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Monday, June 28 • 1:00pm - 2:00pm
#115 SL: Patient-Centric Engagement Strategies

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Component Type: Session
Level: Intermediate
CE: ACPE 1.00 Knowledge UAN: 0286-0000-21-526-L04-P; CME 1.00; IACET 1.00; RN 1.00

This session will provide insights on stakeholder engagement for clinical trials from beginning to end by identifying and incorporating the best tools and resources to support a shift toward virtual research. Recognizing the need to keep patients engaged, the session will propose a framework to support patient adherence for digital health technologies, as well as identify communication tools to support recruitment. Additionally, the session will identify avenues to collect patient input on study design that overcome potential internal barriers to patient engagement.

Learning Objectives

Provide insights on stakeholder engagement for clinical trials from beginning to end; Recognize the need to keep patients engaged using a framework to support patient adherence for digital health technologies; Identify avenues to collect patient input on study design that overcome potential internal barriers to patient engagement.

Chair

Kristina Bowyer

Speaker

Community Voices in Research (CVR): A Patient-Centric Approach to Study Design Phase Through Community Research Network
Rosaura P Vidal, MPH

Managing Patient Adherence for Digital Devices
Aman Thukral, MPharm, MS

Communicating at the Speed of 0-17K: Facilitating Rapid Research Recruitment in a Pandemic
Jennifer Cook, MPH


Speakers
avatar for Kristina Bowyer

Kristina Bowyer

Vice President, Patient Advocacy & Engagement, Ionis Pharmaceuticals, Inc., United States
Kristina Bowyer joined Ionis in 1992 and currently serves as the Vice President of Patient Centric Drug Development. She founded Ionis’ Patient Advocacy program 2012 to ensure that the patient perspective is incorporated into every aspect of drug development. Kristina’s expertise... Read More →
avatar for Aman Thukral

Aman Thukral

Director, Global Head-Digital Operations and Clinical Systems, AbbVie, Inc., United States
Aman Thukral is the Head of Clinical Systems and Digital Operations at AbbVie. In this position, Aman is responsible for leading clinical systems such as EDC, IRT, ePRO, CDR, Medical Coding. Also, he manages the implementation and roll-out of novel digital technologies at AbbVie... Read More →
avatar for Rosaura Vidal

Rosaura Vidal

Clinical Research Education Specialist, National Hemophilia Foundation, United States
Rosaura Vidal, MPH, is a Clinical Research Education Specialist at The National Hemophilia Foundation (NHF). In her current role she develops & designs educational content for the CVR platform; a patient-powered registry, and manages NHF’s Community Research Network consisting of... Read More →
JC

Jenny Cook

Study and Project Engagement Specialist, Duke Clinical Research Institute, United States
Jennifer Cook, MPH, is a clinical research communications project manager on the DCRI's Research Communications & Engagement team. She has over 25 years of experience in healthcare communication and research including politics and policy, community engagement, ethics, global health... Read More →

Monday June 28, 2021 1:00pm - 2:00pm EDT
TBD Virtual Event Horsham, PA 19044
  02: ClinTrials -ClinOps, Session |   05: Patient Engagement, Session