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Thursday, June 17 • 12:00pm - 1:00pm
#507 OD: Patient-Led Special Initiatives

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Component Type: Session
Level: Intermediate

In this session, we will share the experiences of practitioners in a wide range of healthcare, research, and patient settings.

Learning Objectives

Identify how patient involvement and engagement can inform protocol design, improve clinical trial experiences, and help shape policy and practice; Describe case studies of fit-for-purpose patient engagement; Explain the need for and components of a framework/toolkit that can be used to help organizations facilitate patient engagement.


Jennifer Farmer, MS


Coping and Hoping: Patient-Led Initiatives To Improve Cancer Patient Experiences in the UK
Richard Stephens, MA

New Insights on Pediatric Clinical Trials: Parent and Child Perspectives
Annick De Bruin, MBA

Developing an Enterprise-Wide Patient Engagement Framework
Valerie Powell, MS

avatar for Valerie Powell

Valerie Powell

Chief Patient Officer, CorEvitas and Vice President, Patient Experience, Healthivibe, The Patient Experience Team of Corevitas, LLC, United States
Valerie Powell has over 35 years of experience in the pharmaceutical space and an advanced degree in Instructional and Performance Technology. She is the Chief Patient Officer of CorEvitas, ensuring the organization's services center on and address the needs of patients worldwide... Read More →
avatar for Richard Stephens

Richard Stephens

Former Chair, Consumer Forum (Patient Advocates), National Cancer Research Institute (NCRI), United Kingdom
Richard Stephens has survived two cancers, a heart emergency, and continued co-morbidities and late effects. He has participated in four interventional studies and nine others. He chaired the NCRI Consumer Forum 2012-2019 and now chairs BBMRI-ERIC’s Stakeholder Forum (Europe’s... Read More →
avatar for Annick De Bruin

Annick De Bruin

Senior Director, Research Services, CISCRP, United States
Annick de Bruin is the Senior Director of Research Services at the Center for Information and Study on Clinical Research Participation (CISCRP). She is responsible for the design, implementation, analysis and reporting of a variety of CISCRP research studies including the Perceptions... Read More →
avatar for Jennifer Farmer

Jennifer Farmer

Chief Executive Officer, Friedreich`S Ataxia Research Alliance (FARA), United States
Jennifer Farmer is the Chief Executive Officer of the Friedreich’s Ataxia Research Alliance (FARA). She is one of the founders and the coordinator for the Collaborative Clinical Research Network in FA. In her current role at FARA as CEO, she helps to carry out the strategic mission... Read More →

Thursday June 17, 2021 12:00pm - 1:00pm EDT
TBD Virtual Event Horsham, PA 19044
  05: Patient Engagement, Session |   20: Early Access Content, Session